What could be wrong....

was this going to be the beginning of what was to come???
Oh yes.  But of course I was not aware of other problems with Andrew till day 2.
Day 2 still no poop.
Not good.
 In he went for a x ray. He came back from x ray to vomit up stool. Oh my God what was wrong with my son.  They gave him another enima and still after a few hours nothing came out.
The doctor now wanted to see us.  He said what we think Andrew has is a bowel disease called Hirschsprungs.  Its were there is a lack of cells in the bowel line. Kinda like kinking a garden hose and the stool can not move passed it. 
The wanted to take Andrew into surgery right away.
My head began to spin.
WHAT, Hirschsprungs, there was only a 4% chance he could get that. I said.
He can't have that I said strongly to the doctors.
They looked puzzled. 
I said it again in case they did not hear me right. 
"he can't have that... I did not research that disease and I don't know how to deal with this."
Next the doctor explained Andrew would have a colostomy.
Dear God.....what the hell was happening with my poor son.
a gross ugly stoma on his belly and worse yet this would be for life.
I began to feel dizzy and nauseous.  I was so scared.
They reassured me it was manageable and that we would be taught how to deal with the colostomy bags and cleaning ect.
I remember this all feeling surreal.

I was suppose to get a baby with Down Syndrome and a curable heart defect.  Now the rules were changing.  I was not sure I could handle this. What about Kent could he cope?
He was being so closed mouth. No tears, no fear, nothing like me.  Why?  How was he coping, or was he just NOT coping at all.
Kent reassured me that we would deal with what ever came our way together.

Now looking back at that time, I felt so alone.  It was like the time in my life when my mother had committed suicide.  I did not know anyone who had lost a parent to death, let alone suicide.
 Now looking back Kent hid his fears from me. Feeling he could not break down for fear I would lose it and never recover.  He felt he had to be the strong one.  I only wish now that he had expressed his feeling of fear to me.  For that was the beginning of the time I began to resent him.  Little did I know the resentment would build for 4 years till it would cause me to want a divorce from him.
But that's a totally different story for another time.

Andrew went into surgery and he developed a serious infection in his PIC and Central line IV's. 
This would halt the open heart surgery for 24 days until they could give him a series of antibiotics to cure him.
Now this would not be such a issue but Andrew needed to have a part of his heart stay open in order to get enough oxygen to his lungs and heart.  The medication to help him keep his PDA open was not used for the length of time normally that they needed.  This was his only option so we prayed it would work.

My son is the most amazing human I have ever known.
More to come.